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Indigenous populations, in common with all populations, stand to benefit from the potential of genetic research to lead to improvements in diagnostic and therapeutic tools for a wide range of complex diseases. In S. Lindee and R Ventura Santos (eds.) These protocols may serve as a starting reference point for other future researchers in Tanzania if they apply IST in their research such that the voices of Indigenous people may be heard, and the community has a greater degree of control and input in the planning and designing of the project, as well as the analysis and dissemination of the information. While this list is organized regionally, all sources have contributions to the overall discussion. UBC Library Catalogue: Searching for "Indigenous research ethics" results in a very focused retrieval of books and media.. Summon: Searching for "Indigenous research ethics" retrieves a larger range of material, including articles and chapters in books. ?bcsi_scan_2687365ababd2c82=0&bcsi_scan_filename= Change in blood pressure was influenced by the number of cardiovascular conditions participants experienced. There is a need for more rigorous evaluations of interventions targeting reductions in SNAP risk factors among Indigenous Australians, and to establish the reliability and validity of measures to quantify their effect. To improve quality of life and life expectancy for people living with CV disease, secondary prevention strategies such as rehabilitation and self-management programs are critical. Ethics and dissemination https://www.griffith.edu.au/__data/assets/pdf_file/0007/282850/DKCRC-Aboriginal-Knowledge-and-IP-Protocol-Community-Guide.pdf, "Values and Ethics - Guidelines for Ethical Conduct in Aboriginal and Torres Strait Islander Health Research" 5. UBC researchers and key community leaders engage in cross-disciplinary dialogue on building meaningful relationships between indigenous communities and research institutions. The recommendations seem more stringent than those previously published by the NHMRC for medical research in general. The point of this, for me, is to bring these methods into my scholarship, alongside creative and conventional methods, as appropriate. Discussion Several States independently have proposed or promulgated similar guidelines for Aboriginal research. CRCATH 1997–2002; Working towards change in Indigenous health research: LINKS Project research report. (2000). http://www.mcmaster.ca/ors/ethics/info_links.htm
FNIGC research guidelines and overview of OCAP principles developed in its role as data steward of the First Nations Regional Health Survey.
‘Indigenous Counselling and Nicotine (ICAN) QUIT in Pregnancy’ aims to address the prevalence of smoking during pregnancy by enhancing health providers’ training in offering evidence-based smoking cessation care to Aboriginal mothers during pregnancy. https://www.yukoncollege.yk.ca/sites/default/files/inline-files/YRC_FN_Initiatives_no_photos_inside_final_print_0.pdf, “Ethical Principles for the Conduct of Research in the North” You can request the full-text of this article directly from the authors on ResearchGate. Indigenous Peoples Speciality Group of the Association of American Geographers, IISG Abstract views reflect the number of visits to the article landing page. - An outbreak investigation was undertaken of a cluster of Salmonella Typhimurium with a unique MLVA pattern in Canberra, ACT. This paper outlines the participatory research approach adopted for the developmental phase of the ‘ICAN QUIT in Pregnancy’ project developed in partnership with two Aboriginal Community-Controlled Health Services in NSW, and negotiation processes undertaken to implement a pilot intervention across NSW, SA and Qld.
The paper covers the history and parameters of these three ethical review institutions, identifies shared blind spots, and discusses the consequences of these blind spots for indigenous communities, ending with some suggestions of ways to address the problems in the system. 12,
In this paper I present an outline of these developments, and briefly discuss the review process.
A great deal of literature and guidelines have emerged regarding appropriate methods and practices for conducting research with Indigenous Peoples. http://www.anzea.org.nz/wp-content/uploads/2013/05/ethics_of_research_with_whanau_collectives-kennedy_cram_mai.pdf, "A Handbook for USP Researchers" In spite of many and varied concerns that the processes of institutional ethical review are flawed, cumbersome, and in need of reform, these processes do provide effective protection in certain situations for individual research subjects, researchers, and the institutions from which the researchers venture to conduct their fieldwork. National Aboriginal Health Organization (FNC@NAHO) About the indigenous people themselves there would be more debate. We then identify some barriers to the achievement of these objectives and outline recently developed interventions from the field of health research that aim to promote a more effective working relationship between Indigenous peoples and members of the research community.
Summon: Searching for "Indigenous research ethics" retrieves a larger range of material, including articles and chapters in books.
In this paper, I show how I developed nine ethical protocols for conducting culturally, respectful and safe research with the Sukuma people in Tanzania and how I used those protocols within a research project on girls and secondary education in rural Tanzania. to the values stated in these documents: reciprocity; respect; equality; responsibility; survival and protection; and spirit There is growing evidence that the cultures of Indigenous peoples influence their health and wellbeing. ... 34 Providing evidence of IIV uptake, safety and effectiveness in pregnancy in a consistent, appropriate and culturally acceptable way for Aboriginal women and their families is also essential. However, developing effective Aboriginal health promotion requires more than a 'culturally appropriate' adaptation of mainstream resources.
In reference to Tanzania, this approach is new. Principles of Ethical Métis Research. (See the left-hand column).
Spring, New Zealand Maori, in common with the indigenous peoples of many countries, face considerable alcohol-related problems.
However, because these organisations are often already under-resourced, it may be necessary for research institutions to provide practical support to enable them to undertake an active role in research brokerage. Request the article directly from the authors on ResearchGate.
Discussion Paper no, Indigenous health and ‘Western research’. It would be a matter for punishment ‘if any of our subjects shall wantonly destroy them, or give them unnecessary interruption in the exercise of their several occupations’.2. Several other Indigenous governance bodies and organizations have developed guiding documents that offer insights into ethical conduct of research in specific communities.
CORE Tutorial Module 9: Research Involving First Nations, Inuit & Métis Peoples of Canada.
The paper also suggests a model for the integration of both mainstream science and local knowledge and technologies for enhancing sustainable growth and development in sub-Saharan Africa (SSA). Study design:
Indigenous Standpoint Theory (IST) is yet to be widely applied in guiding the conduct of research that involves Indigenous people in Africa. http://acuns.ca/wp-content/uploads/2010/09/EthicsEnglishmarch2003.pdf, “Sacred Ways of Life” Traditional Knowledge Toolkit Difficulty in obtaining access, restrictions placed on access, or withdrawal of support can be devastating to a postgraduate researcher and can cause not only considerable emotional upheaval, but such a setback can also have ramifications on project quality as well as completion. Aboriginal Community Controlled Health Services (ACCHSs) and Aboriginal Community Controlled Health Organisations (ACCHOs) were cited as the main provider of health information in both sites. Objectives: The educational system in this country has been built according to Eurocentric cultural norms with the hope, and perhaps expectation that Māori will conform.
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